Maisie has been doing awesome at home. When she left the hospital, she was 5lbs 5oz. At her doctor's appointment Wednesday, just 10 days post discharge, she weighed in at an impressive 6lbs 2oz!
She has also turned into a baby banshee. Maisie does not cry, doesn't fuss, and typically just squeaks her way through the day. She's very low key. However, a few days ago she started doing a high pitched squeal at the top of her lungs. It is SO incredibly loud and I'm sure she's waking up the neighborhood. It's her way of saying "FEED ME, NOW! FEED ME, MORE!" or, "I'M WET! I DIDN'T CARE BEFORE BUT I CARE NOW!"
Maisie is definitely in charge. I wonder how it will be when we get James home. His faint little cry has nothing on her shrill bloody murder banshee squeals.
In James news, he is a totally different baby. He's back on comfort flow oxygen and doing fantastic. He and Maisie act so much alike that it is startling at times. You can tell he feels so much better without pressure from fluid in his ventricles, his hernias and ostomies, and the constant irritation/restriction from the vent tubes.
The next big thing for James is bottle feeding. He is almost off TPN or his IV nutrition, and when they wean his oxygen settings again we will likely do a swallow study to find out how to move forward to help James succeed. You can tell James is ready for this challenge - he has been rooting for weeks and if he could eat his pacifier, he would have done it a while ago.