Monday, October 28, 2013

16 months old / James's home-a-versary

A year ago we went to PSL with Maisie in tow. James was in one of the tiny closet-like rooms on the 7th floor and we waited patiently for many things to get started.

His Broviac line was removed. We met with his surgeons. We met with the neonatologists, the Apria representative, and we signed lots of paperwork. His binders worth of medical files were condensed into a discharge summary of nearly 100 pages. For the entire morning he was wire free- all of the monitors had been turned off and removed, leaving James a free baby. We dressed him in an alien outfit and hat and once we got the okay, we were outta there! 

First we visited all of our friends on the 7th floor, and then went down to his old stomping grounds on the 3rd in the level 3C/4 NICU. He spent so many months there, causing trouble and commotion that we had a big party on the day of James's discharge. So many people just couldn't believe this day had come. 

For a little baby who had beaten the odds - was not supposed to live, survive, be here at all - he was going home on a relatively normal timeframe with just a bit of oxygen and no other wires or tubes attached. 

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It's crazy for us to think we've been gone from the NICU for a year. Every single day I am reminded how lucky we are and how simply amazing our NICU team at PSL was and is. They are world class. From the respiratory therapists to the surgeons, to the nurses and doctors and developmental team... and many, many, more. 

We still visit regularly. The graduate NICU people with the exception of our primaries generally have no idea who we are - mostly because we spent a few weeks there. But our friends in the NICU remember us and our babies like it was just yesterday. They are so proud to see them healthy, growing, and off O's. 

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The little dragons are 16 months old as of Saturday. We celebrated with a Trick-or-Treat street at my work. Cousin Giblet and Auntie Ca came into town, so yesterday we went to the Children's Museum and our cousin's birthday party. Today we did Build-a-Bear and the babies of course picked out twin bears.  



Here's what the babies are doing and loving right now:

Maisie:
Climbing, feeding herself, learning body parts, climbing, blue, getting in trouble, chattering, being wild, sniffing like a bunny rabbit, climbing, pointing, blowing kisses, getting messy, bulldozing over James and other "obstacles", shiny things, giraffes, making animal noises, stealing toys from James, climbing, reading books, being a Houdini, cruising and almost walking, opening and closing doors, turning on and off lights, trying to get into the refrigerator and dishwasher, getting into the toybox, hairbrushes, looking at photos of herself, and climbing (lord help us). 

James:
Exploring the house, getting in trouble with Maisie, fighting over toys, pulling up on things, the green ball, crawling all around the house, saying "ball" a thousand times a day amongst other things, eating anything as long as it's fed to him, the green ball, rings and small toys, musical toys, getting in trouble, eating clothes, bright green, chasing the green ball around the house, giggling, learning body parts, disco dancing, wipes containers, talking up a storm, walking with help, pushing the shopping cart, fighting with Maisie, opening and closing doors, and obsessing over the green ball. 

1 comment:

  1. You are very blessed and they are adorable!!

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