Wednesday, March 26, 2014

21 months old

Today the babies had their final Synagis shots. It's a bit surreal that they have had a full two seasons - and even more surreal that in a few short months they will be two years old. How time flies!

Tonight they are fighting off some sort of cold and are super grumpy. We've pulled out all of our tricks (Nosefrida's, saline, cool mist Humidifier, Snuza's, baby monitor, Nebulizer et al, etc) and hopefully things calm down or we will be in for a long few days/nights. 

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At 21 months the Little Dragons are moving fast. Here are their favorites right now:




Maisie:
Book: Five Little Monkeys, Where's Maisy, & Good Night, Little Dragons
Song: "Baby's Getting Up" by Caspar Babypants 
Words: her newest words have been pine cone, stick, necklace, "Hop on Pop". 
Toy: Doors. She has officially mastered using the doorknob. Oh, she loves the great outdoors. 
Food: cheese, banana, veggie straws
Animal: dog, bear, monkey, giraffe
Time of the Day: tooth brushing at night night
Activity: trying to melt things on the sunroom pellet stove when we aren't looking (sunglasses were the first and hopefully only victim)
Color: blue or purple
Clothing Size: 9-12 months
Shoe Size: 3.5 wide
Weight: 19 lbs
Height: ?
Number of Teeth: 11


James:
Book: Baby Beluga, or Good Night, Little Dragons
Song: "Baby's Getting Up" by Caspar Babypants
Words: his newest words are love, round, away, cone
Toy: ball, Tupperware container
Food: applesauce aka "bowl"
Animal: anything that "Roars"!
Time of the Day: playtime
Activity: dancing
Color: green or orange
Clothing Size: 9-12 months (though he can wear 3 month pants)
Shoe Size: 3.5 
Weight: 17lbs 1oz
Height: ?
Number of Teeth: 12




Sunday, March 23, 2014

Playtime



The Little Dragons have always liked to play together, but as James is getting more mobile things are becoming much more interesting.

Maisie used to torment James a lot more than she does now. She will often find a ball or toy for James to play with if he's in meltdown-mode, and Maisie doesn't pull his hair anymore. Actually, she prefers to pet his hair softly and say "nice, nice", give him hugs and kisses, etc. James doesn't know what to do with this affection and sometimes bursts into tears. 

James is happy to keep up with his older (by one minute) sister. He can get into more trouble and hold his own when battling for toys.


Today was the babies' first real bath together where they played and were able to splash and have fun. James doesn't sit well on his own, especially in the bath and Maisie is downright wild. We've tried a group bath one other time and it was more than chaotic - they both tried to drown each other and Jimmy and I were crowded on the edge, trying to separate them. Today they happily chased balls around the bathtub and were very sad when we got them out. 


The fact that the babies like to play with each other is perhaps the best thing about having twins. I don't know what having a singleton is like, or even having two kids close together. But I'll say this - our babies are very sociable and it has been fun to watch. Their troublemaking is interesting and sometimes I don't even have time to get a photo (like the time they emptied the entire box of Chex in the kitchen, had a breakfast free for all and smashed the leftovers to bits).  

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I have to admit that this year, I'm a bit behind on the March for Babies.... but so are you! I'm the only person to donate to our team. I hope we'll at least get to $626 this year. Will you help us?

Walk / Donate today!

http://m.marchforbabies.org/s_team_page.asp?seid=2000992

Friday, March 14, 2014

2 years ago

It was 730 days ago when our lives were turned upside down and this crazy journey began. It was meant to be, perhaps. This was our plan. 

pProm happens to 150,000 women in the US every year and is a factor in 40% of premature births. 

pProm happens as early as the first trimester, and is survivable. 

We are a testimony to these facts. 

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Everything about our lives is different today than it was two years ago. It's been worth it, and I wouldn't change it. While this path isn't for the faint of heart, it is guided by love and an overwhelming sense of staying determined for the best possible outcome. There's a lot to be said about the determination of the human spirit, and the will of individuals to overcome the impossible.

I'm sure one day we will see and feel "normal" again. But until then, we go on helping the disillusioned and the distraught, the families told that the only option is to give up their babies to save themselves. We work to show that another course of action is to do nothing at all but a simple course of vitamins and bed rest, and let the cards of life fall as they may. Let these amazing babies prove themselves and their fighting will and determination to us. 

We work to show providers that we are educated and informed, and that we will make the best choices for our families without being pressured by statistics. We work to build partnerships and better understand how to help fragile babies born too soon because of circumstances out of our control. We aim to bring hope. 

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Through our pProm experience we have met so many amazing doctors, nurses, medical professionals, mothers, babies, families- without whom we would not be here. We continue to write this blog with hopes to inspire those with a pProm diagnosis, or those who wonder what the complications of early pProm and/or premature birth are. Thank you to all who read and continue to follow our story. 




Thursday, March 6, 2014

Seattle

We are officially on vacation. After a late night flight we have had a fun day with cousin Marri, Auntie Ca and Uncle Da. The babies have been pretty wild but it's been fun so far. 





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James had a follow up appointment on Monday to go over the MRI results. The consensus is that we will do a CT Myelogram to make sure the spinal cysts are actually cysts, and to prepare for an upcoming surgery to remove them while repairing the tethered cord in mid-April.

To read more about the tethered cord, see this page: http://www.seattlechildrens.org/medical-conditions/brain-nervous-system-mental-conditions/tethered-spinal-cord/