Friday, September 26, 2014

27 months old

The little dragons are doing great. They're talking, eating, growing, and being toddlers. They are loving and wild, dramatic and imaginative.

We haven't had appointments except to adjust James's AFO's; his legs are gaining strength and muscle mass and he is getting stronger every day. A small adjustment was made to the calf positioner to make room for his growth. 

Coming up we will do flu shots and the IFSP (Individualized Family Service Plan) for Early Intervention. We will be setting up goals and services for our next 6 months of in-home therapy for the babies. 

PS, if you haven't seen the Little Dragons' Facebook page; there are two videos of the babies singing their favorite songs. Go to:

Book: Five Little Monkeys
Song: "ABC Song", "Twinkle Twinkle Little Star", & "Five Little Monkeys"
Words: Hundreds. Sentences. It's crazy. She's very much into "I love you". Today she told the orthotist for James's AFO's: "Oh, I love you foot doctor, I really do." 
Toy: Mickey & Minnie Mouse, Baby Doll, Bucky the Dragon. 
Food: cheese sticks, cookies, pancakes, waffles, avocado, fruit snacks, blueberries, beans, rice, tortillas. 
Animal: dog, kitty, monkey
Time of the Day: Playtime
Activity: drawing, singing, playing with James, playing make believe
Color: blue
Clothing Size: 12-18 months. Finally transitioning to 18 month PJ's!
Shoe Size: 4 
Weight: 19 lbs 11oz at last checkup on 08/15/14
Height: 32 inches
Number of Teeth: 18+

Book: ABC by Dr Suess, or any book with a ball in it. 
Song: "Twinkle Twinkle Little Star", "Elmo's Song", and "Itsy Bitsy Spider". 
Words: James can sing many songs and his vocabulary is exploding right now! It's very exciting. For those who believe he can only say "ball", we've been compiling a list of the words he knows (see below). 
Toy: Any kind of ball- his favorite is currently football. He also likes to play puzzle buckets while standing with his walker. Speaking of the walker; James is walking with it everywhere! 
Food: pancakes, waffles, snickerdoodles, chips, fruit snacks, peaches, applesauce, pasta, tortillas, cheese. 
Animal: dragon or bear
Time of the Day: playtime or Elmo Time
Activity: playing with his ball, walking with help, and chewing on his green blankie. 
Color: green
Clothing Size: 12-18 months. James is wearing 18 month PJ's now, but he can also wear 6 month pants. 
Shoe Size: 4, but with his fancy AFO's aka his "Green Ball Shoes" James wears a size 5.5 wide. 
Weight: 17lbs 9oz at last checkup on 06/30/14
Height: 31 inches
Number of Teeth: 19+

Wednesday, September 17, 2014

Maisie Day

Today we celebrate Maisie. It is her two year Home-A-Versary from the NICU. 

Maisie is growing up fast- exploring, learning, singing and jumping. She can sing "Twinkle Twinkle Little Star" and recite the entire "ABC Song". 

Year One.

Year Two. 

Tonight we ate tacos, cupcakes and ice cream. We stayed up an hour past our bedtime having fun, and just enjoyed time as a family. 

Two years ago, it was the first time we were able to hold both babies together after a long 83 day NICU stay. And James wouldn't come home for another 5 weeks; that week Maisie came home he spent two days and a total of 10 hours in the Operating Room. It was intense. Luckily, we all made it through and are here to celebrate!

I've always felt that Maisie helped protect James during our pregnancy. She kept us safe from infection due to her presentation as baby A. I had very severe issues with placental abruption and bleeding for weeks on end; in pProm bleeding weakens the amniotic sac and it put Maisie at a greater risk of pProm also. It was absolutely amazing that she endured 10 weeks of significant bleeding in the womb and did not rupture. Maisie is strong willed and assertive, and she is very protective over those she loves. I hope she'll continue to nurture those attributes as she grows. 

Tuesday, September 9, 2014

2014 Quarantine

This past weekend was a busy one. We saw our twin friends L&L and we went to the Big Chili Cook-Off in Evergreen. We all had a great time and the little dragons enjoyed eating lots of amazing food, as always.

The Big Chili Cook-Off was fun; we saw lots of fire trucks and tried dozens of types of chili. The event raises money for the mountain area volunteer fire departments and turns out a pretty good crowd. The little dragons voted for their favorite chilis and they loved the red chili from Cactus Jack's. It was a hit. 

It turns out that there are some pretty powerful bugs going around lately, and lots of kids have been hospitalized with Enterovirus 68. We are no stranger to enterovirus as Maisie had this and rhinovirus when she went into the PICU for the first time last November. 

The little dragons won't be getting RSV shots this year being two, so we will be going into quarantine earlier than normal this year. It's a little sad that we'll have to keep our playground visits to the backyard, and our playtime restricted to home; but the kids are fine with that. They have a lot to do and plenty to keep them occupied. 

Like, selfies. 

The swimming pool. 

Pedicures (evidenced by foot selfies). 

Elmo ball. 

Good food. 

Mickey and Minnie Mouse. 

Chex parties. 

Our PSA: wash your hands for 20 seconds with soap hottest water you can handle. Get Lysol Grade 3 Aerosol spray or Clorox Professional Grade Germicidal products- 99% of "disinfecting" wipes do not get rid of the viruses and bacteria that make people the sickest. Finally, if you are sick- stay home!