Friday, December 12, 2014

20 pounders!

We've been waiting to post this update for a while, and seeing as how our doctors appointments are really infrequent these days we aren't weighed very often any more. From the NICU days that's kind of tough to transition to, but you get used to it when your kids stay in the same clothes for a year. 

They seem to be on a growth spurt recently- getting taller definitely and perhaps gaining some weight. But, the little dragons are keeping on their curve at way below the 3rd percentile and things are going pretty well. 

Maisie weighs 21 pounds, and James weighs 20 pounds. 

They are pretty much out of their 9 month and under pants due to length, but as clothes are sized all over the place we try to stick to the tall and skinny brands. 

Last weekend we visited Santa and James wore his Christmas outfit for the 3rd year in a row. The pants fit perfectly finally (it's a 3-6 month outfit), the vest was a perfect fit and the shirt was definitely on the end of its life span. Our first Christmas James went pants-less for most of our photos after wearing a pair of Maisie's ruffle-bum pants that he was not happy with. It's crazy to think just how far we've come. 

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Yesterday we went to the spasticity clinic and learned that the AFO's haven't been helping James's feet transition to a more normalized position allowing for proper gait, which affected several of his muscles, limiting his range of motion and creating more hurdles to work through. We determined that he will need more extensive help to prevent his feet from permanently forming into a pronated position. He has made amazing improvements in his strength and abilities with standing/walking, and the AFO's have helped to stabilize him- unfortunately with some negative effects. Therefore we agreed to continue an aggressive therapy plan, do Botox injections in isolated muscles and create better orthotics next month. James will also have another MRI to make sure his spine is stable with no regeneration of the cyst. We are hoping that this will be a step in the right direction for James.
 





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