Saturday, April 23, 2016

Shiny Blue Wheels and March for Babies

This week James's wheelchair arrived. At first observation, it was the tiniest chair I've ever seen. James was initially not too impressed but soon figured out just how well he could get around using his wheels. 

We've been on a few adventures the last few days- the store, in the neighborhood, out on the deck, the mall; and James has been a rock star figuring out how to maneuver his wheels around. James is so happy and proud that he lights up whenever we use it. Most people see wheelchairs and feel pity or disappointment; we see ability and freedom to move without limits. He's pretty amazing and we are very proud of him. 

We walked in our fourth March for Babies. This year was quieter than prior years but we still had an opportunity to see our friends and celebrate our preemies. 

James took his wheels and Maisie walked until she was dragging and then rode in a stroller the rest of the way. We spent a good amount of time on the playground and enjoyed the cloudy and overcast weather. 

Wednesday, April 20, 2016

April Blizzard

In Colorado, April is a heavy snow month. We've been slowly heading into spring, with a few light rain showers; trees and flowers were beginning to bloom. Our winter snow had mostly melted with only a few small patches of icy and dirty snow left around the yard. Maisie loved to jump in muddy puddles like Peppa Pig.

Unfortunately, spring was not here to stay as a huge storm was projected to hit our area over the weekend. On Friday morning, we had marginal snow flakes but no accumulation. By Sunday, our property was buried in nearly four feet of snow. 

The little dragons loved to watch the snowfall and enjoyed a few trips outside. By the time it stopped snowing, the snowfall was well above their heads and play areas were extremely limited. We spent the majority of our time inside, watching movies and playing. 

Maisie loved pretending to be Elsa and James was astounded at the amount of snow. He kept exclaiming "that's a really big snow pile!" - and he was right. This one was a storm for the record books. 

Wednesday, April 13, 2016

RSV times two - again

On Easter evening Maisie started to come down with something. As is common for her, the first signs are usually a fever and low oxygen saturations. We put her on oxygen and patiently waited for things to take their course. While we were able to manage things for a few days, by Wednesday morning she was coughing, retracting, and not really responding to breathing treatments with the nebulizer.

After a rough morning we went to the pediatrician, who advised us to get to the hospital. At the ER, we expected to be admitted for a few days at the very least. Maisie had bronchiolitis due to RSV amongst a few other maladies that required more oversight than we could provide at home. 

Luckily the stay was pretty uneventful. Maisie enjoyed brownies and movies, lots of steamy baths and lemonade. She was a trooper for dealing with an IV and constant respiratory treatments for four days. By Saturday her oxygen requirements were down to a half liter and we were given the okay to return home. 

James started to get sick while Maisie was in the hospital, and by the time she came home he was right in the middle of his illness. Luckily he was well enough to stay home. Both kids required oxygen, breathing treatments and medications regularly, and we were beyond exhausted. 

At the end of week number two, we were pretty much weaned off of oxygen except at night and our nebulizer treatments became less frequent. At nearly three weeks we are finally getting to the point where everyone is sleeping, eating, and with energy levels nearing normal. Maisie is still on her o's at night for the time being. 

These last few weeks of RSV have been tough; juggling work schedules and appointments with just one car, two very sick kids, lots of medical equipment and medications. Luckily our jobs are really flexible and understanding about our situation. After it all, we definitely need a vacation. But more than anything, we hope that the little dragons grow out of their propensity to get very sick with upper respiratory infections and bronchiolitis. 

Here's to hoping that this is our last encounter with RSV.